In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Tuesday, 11 December 2012

Second Skin: Mujhee's third body splint for postural support.

Early this year Mujhee's Second Skin became really tight (the yellow one) because, masha Allah, she put a lot of weight during the summer school holidays. I remember I went to the Second Skin clinic to loosen it up. By the middle of the year it was way too tight for her and wouldn't fit on her anymore so the therapist at Second Skin suggested a new one.

At that time we could not get any funding so we missed the May clinic. Alhamdulillah by September 2012 Mujhee's funding was granted through the Association of the Advancement of Brain Injured Child (WA) Inc. and we got into the September clinic. In October her custom made suit was ready. She choose orange for her new suit. Masha Allah, you can see how much she has grown from the picture above.

Why does Mujhee need the second skin postural suit or body splint? Mujhee has difficulty to sit up, stand and walk because she has tight and stiff muscles as a result of the brain injuries during birth. The part of her brain that controls movement is affected. Some time she can't even hold her body and head up. This suit gives her stability for sitting, standing and walking (insha Allah one day). It can also improves her posture while reducing the risk of injuries that associate with poor postural. 

Mujhee had her spine x-ray last year and it showed a 15 % curvature. With this suit, which is designed for the management of scoliosis or curved spine, insha Allah, her spinal alignment can be improved and at least prevent it from a greater curve or spinal deformities.  

Masha Allah, it is not only giving stability and postural support but also helps with respiration and blood circulation. Insha Allah you can see why someone with spastic cerebral palsy like Mujhee is in need of this suit.

Alhamdulillah Mujhee gets the postural support that she needs not only from the second skin postural suit but also from her seating system.

For more info about Second Skin Postural Suit read here and postural support from seating system read here.

Thursday, 29 November 2012

When you miss someone

There are moments in your life when The Most Highest teaches you and it hits you right into your heart. Well today there was a lesson that He taught me through a young man who I thought would never in a million of year stop and talk to me. You know how the young kids are. They think that talking to older people is not cool.

That day (Oct, 2012) Mujhee had her dentist and Botox under anesthesia  It was in the late afternoon and I was rushing home to avoid the traffic. When I reached the car park a car came and parked next to my car. Mujhee was on her wheelchair in between ours two cars. There was a young man around the age of my eldest son driving that car. I was worried and thought that he had bad intentions because he kept staring at us.

It came as a surprise to me when suddenly the young man has an interest about Mujhee and asked me, "what is her name?". After that he asked how old is Mujhee. Not only that, he also asked me if she has cerebral palsy. Then he told me that he has a brother who also has cerebral palsy. I asked him about how his brother but sadly he said that his brother passed away when he was seven.

That young man taught me about remembering the loved one. I could almost feel how much he missed his brother. Subhana Allah, I have been asking myself about  how I would remember my loved one when they are not with me anymore? The answer is I don't know

Tuesday, 27 November 2012

All I want is a hug.

Bed time on 15th November 2013.

Mama: Bed time. You go to sleep.
Mujaheeda: Moving mouth and vocalizing.
Mama: Do you have something to say?
Mujaheeda: Slightly nods her head and moving her mouth.
Mama: Wait! I'll get PODD  book.
Mujaheeda: Vocalizing.
Mama: (Showing her the communication book)
Mujaheeda: Something to say. It's time for. Hug/cuddle.
Mama: Teary...

Saturday, 7 July 2012

Goodbye and I love you.

"Truly! To Allah we belong and truly, to Him we shall return." Quran 2: 156
"And to Allah belongs all that is in the heavens and all that is in the earth. And all matters go back (for decision) to Allah."  Quran 3:109
How could you be happy on your birthday, when a few days before your dear friend passed away? Last month was Mujhee's birthday. A few days before it, her dear friend, Aliyah, passed away. Mujhee was sad and I could sense it.

I asked Mujhee about Aliyah using her PODD communication book and here what she said
I don't like this, sad. Chat words, uh oh. More to say - chat words, goodbye. More to say - chat words, I love you. More to say - chat words, finish.
The day when I mention to Mujhee about Aliyah's funeral, she had tears on both of her eyes. I went to the funeral alone but I promised to take her to Aliyah's perfect resting place one day.

Mujhee at Aliyah's cemetery.
Our family are extending our deepest and heartfelt sympathy to Aliyah's family, especially to her amazing mum and wonderful sisters. We are deeply saddened to hear of their lost. Our prayers are with her family during this time of sorrow.

God saw Aliyah getting "tired" and a cure was not to be. So He sent His angel to her and whispered "Come back to your Lord." With tearful eyes we watched her, and saw her pass away. Although we loved her dearly, we could not make her stay. A golden heart stopped beating, hardworking hands at rest. God broke our hearts to prove to us, He only takes the best.

Aliyah brought so many gifts to our life and we will never forget her smiles and her giggles. This world will not be the same without her.

We miss you much.

We love you much.

See you later Aliyah, in Paradise!

Thursday, 21 June 2012

Everyday should be a Mother's Day.

Alhamdulillah, o thank you Allah
mama home, alhamdulillah
abah home, alhamdulillah
thank you Allah for your blessing on me.

I remember singing the above nasheed with my children when they were little. This song makes me remember that parents are blessings from Allah and I must be grateful to Him and appreciate my parents. Without them there wouldn't be a story of my life. No lightnur! 

For Mother's Day, do you want to know what Mujhee wrote about me at school? She said that I am good, great and clever. Her words touched my heart deeply and tears ran down my checks. Subhanallah, how Allah put immeasurable unconditional love between us. How Merciful is He? Extremely!

She also paint a portrait of me. I'm so proud of her painting. For me she is my Picasso. I love you, Mujhee. 

I remember years ago when Niifah and Kay asked me what gift I want for Mother's Day. I told them that we don't set aside special day to honour our mother because it is not enough to celebrate for only one day in a year. You have to remember her struggle and sacrifice as she carried you, gave birth and raising you up. You should love, respect, obey and be grateful for your mother and your father everyday. 

There is no doubt that in Islam, we have high respect for mothers. The Creator of human beings has commanded us through His words in the Quran, to treat parents with kindness and to respect them at all times. We have to appreciate what they do for us.
"And We have enjoined upon man, to his parents, good treatment. His mother carried him with hardship and gave birth to him with hardship, and his gestation and weaning [period] is thirty months. [He grows] until, when he reaches maturity and reaches [the age of] forty years, he says, "My Lord, enable me to be grateful for Your favor which You have bestowed upon me and upon my parents and to work righteousness of which You will approve and make righteous for me my offspring. Indeed, I have repented to You, and indeed, I am of the Muslims." [Noble Quran 46:15]

 We were asked to obey our parents and take a good care of them especially when they get old.
"Your Lord has decreed that you worship none but Him and that you be kind to parents. Whether one or both of them attain old age in your life, say not to them a word of contempt, nor repel them, but address them in terms of honor. And out of kindness, lower to them the wing of humility and say, "My Lord! Bestow on them Your Mercy even as they cherished me in childhood." [Noble Quran 17:23-24]

In our household, we do nice things for each other through out the year. Anytime of the year we appreciate one another and not just on a special holiday or when the card company decides. 

As parents, it is an amanah or trust from Allah to me to make my children growing up as a righteous people and be responsible for their on deeds. In sha Allah, I should love, take care and provide my children with what they need. My children has to understand that the kind treatment and respect towards me and their father will only bring them closer to Allah. 

I work hard every day but I don't ask anything in return because I do it for the sake of Allah only. My wish is that my children will always pray for me after I passed away. Most importantly, I pray that we all will be reunited in the paradise on the hereafter. I also ask Allah to reward my parents with the best rewards for what they did to me.

Wednesday, 20 June 2012

Oenanthe Crocata.

Mujhee was on prescribed homeopathic remedies since she was one and a half years until she was maybe around five years old. We stopped seeing her homeopath because she moved back to the UK. It was a great loss for us. After that Mujhee developed seizures and was unable to sleep at night. She was also more stiff than before. Generally she was not alert and not very happy either. Now she is on Clonazapam and Keppra to manage her seizures.

As a family we still use the homeopathic remedy for general illness particularly for cold and flus, teething and fever but nevertheless, I wish we have a homeopathy to prescribe us remedies for serious illness.

A few months ago I decided to seek medical advice from a homeopathy again. I call a brother from As Shifa Clinic who is a Naturopath in our community and prescribe homeopathic remedies. When we came for our initial appointment, he happen to know Mujhee's father very well. I thought, well man, specifically my husband, is he really present and what is he really doing? Just a circle of sleep, wake up, eat and go to work! Hello! We have problems here. We need a solution. We can't just swept it under the carpet and pretend it's gone.

Right, to cut the story short, Mujhee's homeopathic prescribed her oenanthe crocata 700c remedy recently. The first time I gave it to her was at night before she went to sleep at 9 pm. She fell asleep at 11 pm. After that night, her sleeping got better and better every night. I feel like I have a new Mujhee. Most impotantly, she is so much more alert and I can see the brightness in her eyes. I haven't see serious seizures in 10 days, however she does get seizures when she was unwell from coughing recently. 

Alhamdulillah, since that initial appointment we have done a couple of reviews. Insha Allah, we will get the right remedy for Mujhee's seizure and I'm hoping to see more Mujhee. Ya Rabb, I ask You to give her shifa, ameen.

This is a great reading, Epilepsy - Homeopathy treatment and Homeopathic Remedies by Homeopathy Doctor Bhatia. Other links are here and here.

Thursday, 17 May 2012

The Life That's Chosen Me lyrics

(written by Karen Taylor-Good and Lisa Aschmann)

We had such expectations, we would soon be giving birth
To the next Chopin, the next Einstein, the greatest child on earth
And we'd be the perfect family, soon we'd have the perfect kid
We'd never have a challenge or a problem, God forbid
Oh but Life had different plans, so I need for you to understand

Don't desert me, don't ignore
I need friends now more than I ever did before
Show compassion but please don't pity me
I'm a parent just like you, it's true
But I have special needs

I need you to notice that my life's different from yours
I need you not to judge me, don't condemn and don't keep score
I'd love an extra pair of hands, or just a hug or two
I need you to acknowledge that I carry more than you
Got the world here on my back, so I just thought I would ask

Don't desert me, don't ignore
I need friends now more than I ever did before
What you take for granted comes so hard for me
I'm a parent just like you, it's true
But I have special needs

I need answers, I need help, it's so much work
And a miracle or two sure wouldn't hurt

Don't desert me, don't ignore
I need friends now more than I ever did before
It's not the life that I'd have chosen, but it's the life that's chosen me
I'm a parent just like you, it's true
But I have special needs

I need you to listen, I need you to care
I need your understanding, I need you just to be there
I need your friendship, maybe a hug or two
Oh God I need a miracle........

I found this video in one of my facebook special needs group. The lyrics touch my heart deeply, so I thought I would share this with you. This video contains music. 

 Allah has a plan for me and you.

Wednesday, 9 May 2012

Mujhee thinks her new postural seat is fun.

The customised postural seat for Mujhee's
wheelchair without covers.
Me: I'm asking a question
What do you think?
more to say, Go to Categories
wheelchair (the customised postural seat).

Mujhee: I like this

Me: more to say, I'm asking a question
You need to tell me Yes or No
colours (for the postural seat covers).

Mujhee: red, yellow or green - yes (she nods her head)
red - yes (she nods her head again).

Me: I like this

Mujhee: smile.

You can read about her previous wheelchair post here.

Sunday, 29 April 2012

The return of grief: the hearing test result.

Last Thursday, I was looking forward to Mujhee's hearing test with positive results. All the time, I was thinking that the result would prove that Mujhee can hear. I was so excited when the audiologist told me that there is a new machine that can test Muhee's hearing. The three weeks wait for the appointment seemed so long for me. I was so impatient and hoping she got the test on that same day.

Sleeping during the hearing test
at Australian Hearing.
I found myself revisiting my grief as the audiologist broke the news about Mujhee's hearing test. Like her vision there is nothing wrong with her ears, but the brain that process her hearing and vision. As my tears filled over, I hated that very moment. I hated that and I bitterly wept. How could I forget the answer that the senior pediatrician gave me, seven years ago, saying that there is no cure for brain damage when I asked him what the cure for it is?

It hit me again, but this time it hit me much harder than before because now I realised the extent of her disability. She has Cerebral Palsy, a motor disorder which cause problems in controlling and coordinating movement due to the brain damaged during birth. She also has dual sensory impairment, blindness and deafness. The reality that she could not see and hear, walk and talk make my heart become empty again just like the heart of Prophet Musa's mother when she learnt that her son was in the hand of Firaun's household, their enemy. And the heart of the mother of Musa (Moses) became empty [from every thought, except the thought of Musa (Moses)]. She was very near to disclose his (case, i.e. the child is her son), had We not strengthened her heart (with Faith), so that she might remain as one of the believers. Quran 28:10) For me, Allah is testing my patience, submission, and strength of character. Only He can give me strength to get over all of this. Lahaula wala quwwata illa billah.

Alhamdulillah, when I remember Allah, He lifted my fear and grief. Subhana Allah! I still grieve but only through my prayer by asking Him for help to get me through this difficult time. Indeed He has spoken truth when He reveal his words in the Quran that, Surely in the remembrance of Allah do hearts find rest. (Quran 13:28)

It made me realized that it is He who has given everything we have. They are not really ours to begin with. He is the true Owner. At anytime He will take them back because at time being He has just lent them to us for a short time anyway. So it is not our place to be upset when the Owner is claiming his belongings back.

If you think about the meaning of Inna lillahi wa inna ilahi rajiun, which has been taught to us to say at the time of difficulty. It is trully make you submit to the will of Allah with an open heart . We will test you with a certain amount of fear and hunger, and loss of wealth, life, and fruits. But give good news to the steadfast. (Quran 2:155) 

So what is the good news? Insha Allah, I'll write about it in the next post.

Mujhee wants to see the tiger and the bear at the zoo.

Me: I am telling you something
It's going to happen
days & times
days of the week
more to say, go to categories

Muhee: smile

Me: I'm asking a question
You need to tell me Yes or No
more to say, go to categories
I me Mujhee
more to say, go to categories
see look watch
more to say, go to categories 
wild/zoo animals

Mujhee: lion - no (look to the side)
tiger - yes (smile)
elephant - no (look to the side)
hippo - no (look to the side)
giraffe - no (look to the side)
zebra - no (look to the side)
monkey - no (look to the side)
bear - yes (use voice)
bat - no (look to the side)
dinosaur - no (look to the side)

Sunday, 15 April 2012

A new shoes: He has better plans.

Subhana Allah, so many things to make right. I mean, I just realized that my life is so much in mess, so I need a lot of cleaning up to do. I wonder if there is enough time for me. Time is running out, girl!

It's the second week of school holiday here. We're at home, the most perfect place for a great holiday. It's fantastic, relaxing and not having to rush to and from school every morning and afternoon. Alhamdulillah!

Before the school holiday, I met with Mujhee's physio and we discussed about her Piedro boots and AFO's. It has been almost a year since Mujhee's hasn't worn her Ankle and foot Orthosis, AFO's and wearing the boots instead. She's been wearing her Piedro boots for almost 2 years now. She likes the boot. It's comfortable for her. She is quite good with the boots. The boots hold her foot and ankles in the correct position and she is happy standing with them on. We had to think about getting her a new pair of Piedro, because her feet has grown.

She is not an AFO's fan. She hates wearing them. She would only stand for a short while with them on and she easily gets stiff when she wears them. Her physio said that maybe we could get the boots now and then down the track we could get her the AFO's. So I thought we'll just get her a new boots rather than the AFO's right now.

Mean while, I asked around for advice. Most of them didn't really know which one is good for Mujhee. But her peadiatritian said that she needs both of them. The AFO's actually could stretch the calf where the boots couldn't.

Talking about running out of time, last Thursday I planed to take Mujhee to the shoe shop after her 2:30 pm chiropractor appointment. The appointment usually doesn't take long but the waiting does. Alhamdulillah, since we take her here, her hips and muscles improved. Read about Countless blessing, her hips are normal here. That night I made dua, that Allah will make it better so we could have enough time to get the Perth Surgical Shoemakers before it closes at 4 pm.

At the time, I told Mujhee's chiro that she is still struggling with her sleep, he advised us to give her dark chocolate before bed time for snack. He said that dark chocolate contain serotonin, a chemical in the brain that helps keep our mood under control and helps with sleep.

It was 3 pm when we leave the chiropractor clinic. It took us 30 minutes to get to the shoe shop. I was so grateful that my dua was answered when we finally reached at the shop and it was still open. Alhamdulillah! The plan was to do the fitting, then we would have placed an order. Then we would have to wait for 6 weeks to get the shoes. We decided to get the navy blue stability piedro boot in size 28. These boots are really helpful for heel and ankle support. It keeps the feet in a good position.

It was about 4 pm when we got done with the fitting and ordering. On our way to the parking, the lady who served us came and asked if we want to take the black one right away so we don't have to wait for 6 weeks. So I was thinking, subhana Allah, another fantastic plan from Allah for us that day. Alhamdulillah, Mujhee got the new boots that very day.

On our way home we stopped by at a playgroup to reward the girls for the extremely good behaviour and making my day easier.

When we leave our matter to be taken care of to the Almighty God and truly believe that He knows better, it make life so much easier and better.

"Our Lord! Bestow on us mercy from Yourself, and facilitate for us our affair in the right way!" ~ Quran 18:10.

Tuesday, 3 April 2012

A rally to make National Disability Insurance Scheme real

The National Disability Insurance Scheme is about life time care and support for people with disability. For me it is the care and support that would change the struggle we have in the life we live as parents with a child with disability.

There are 10 reasons why we need NDIS listed in Every Australian Counts website which you can read here. More information about NDIS can be found here and the report, The Way Forward - A New Disability Policy Framework for Australia to Parliamentary Secretary is here.

There will be a rally in all capital cities in Australia on Monday, 30th of April, 2012 to make NDIS real.

The NDIS rally details can be downloaded here. I hope we all can participate in this exciting event, to show our support for the campaign.

Perth Rally location and time;

11.40am: Meet in Hay Street Mall (William St End)
12.00pm: March down Mall; Barrack St to Stirling Gardens, Council House Corner of Barrack St and St Georges Terrace
12.30: Rally at Stirling Gardens, Council House

Thursday, 29 March 2012

To lightnur reader, thank you very much.

I have finished my unfinished posts and published them. I wrote them a while ago but just didn't have the time to finish. Enjoy reading and I hope you look forward to posts about her schooling, room renovation, pedro boots and a new custom made wheelchair's seat.

Thank you very much for reading lightnur blog. Thank you for following our blog. I really appreciate your time and your comments. Please do remember us in your prayer and may Allah rewards you all with good.

Before I go here is a picture of Mujhee with a big smiling face in her school uniform, ready for school.

Saturday, 24 March 2012

Unstitched the second skin.

Guess what happened to mujhee's postural second skin suit? It was too tight for her. I had trouble zipping it up, so I went to Second Skin last Friday, 23/03/2012, to alter it because Mujhee has gained a bit of weight. The suit was made three months ago and it doesn't fit her any more so it had to be altered.

Here is a picture of Mujhee standing on Leckey pronestanding frame with a second skin suit on. Masha Allah, look how the suit helps her hold her head up. 

In the picture look how her body curved without the second skin suit on and her head is leaning on the frame.

Alhamdulillah, now it fit her better, but if she keeps on growing at this pace, she'll need a new one sooner.

Saturday, 25 February 2012

Countless blessing, her hips are normal.

Mujhee had her Botox early February this year. They gave a new anesthetic cream, I don't remember its name, for pain relieving. Previously Mujhee was given anesthetic cream and general anaesthetic, midalzolam, before injections. This cream just needs 30 minutes to numb the skin.

The nurse and the physio put cream on the area where the Botox will be injected and wrapped them with glad wrap. I didn't realise that the wrap opened when Mujhee rubbed her right leg against the pillow. As a result, when the paediatrics gave the injections on her calve, she screamed and cried because of the pain. The next two days she also got seizures.  

Mujhee has her orthopaedic appointment a few days after Botox. I was so glad to see Mujhee's very first physiotherapist on that appointment. She is one of the most caring physio that I have encountered. She is willing to assist and provide excellent care for Mujhee. She sent us for a hip x-ray and also managed to get Mujhee an appointment to see her paediatric to discuss her well being.

Alhamdulillah, the x-ray showed that Mujhee's hips are like normal hips. Alhamdulillah, it means that Mujhee doesn't need any more hip surgery like before. Six months ago, I was worried when her x-ray showed more migration of her hips. The physio we saw that time told us that Mujhee might need a surgery for her hips. Alhamdulillah!

It remind me of an ayah in the Quran, Allah (Glorified and Exalted be He) says: "And whatever of blessings and good things you have, it is from Allah. Then, when harm touches you, unto Him you cry aloud for help." [Surah Al-Nahl, 16: 53]

Alhamdulillah, Allah gave me inspiration to take Mujhee to a chiropractor for a treatment. After the treatment I found out that her muscles are relaxed and soft. Before the treatment I remember I discussed with Mujee's pediatrician about her spasticity. She increased her medication but it didn't relax her muscles.

How relaxed is Mujhee in the picture? Very.

I can't wait to tell the news to Mujhee's chiro. I am pretty sure Mujhee hips got better by the chiropractic treatment she had since October last year. I remember when I told Mujhee's chiropractor about the good news he asked me what did I tell them. I was suprised that the orthopaedic wasn't even interested to know how Mujhee's hips got better. He said that I should have told them that Allah answers my prayer.

Alhamdulillah, I thank Allah for the highest blessing He gives us. This is certainly a great gift from Him.

Allah says in the Quran, Surah An Nahl (16:18); If ye would count up the favours of Allah, never would ye be able to number them: for Allah is Oft-forgiving, Most Merciful.

Wednesday, 8 February 2012

Using her legs, with His permission.

Alhamdulillah I think Mujhee can make movements using her legs. The above picture Mujhee was kicking the ball while waiting at the Second Skin appointment. 

I remember when I attended Mujhe's class with her special teacher from WAIDE. Her teacher mentions to me that Mujhee uses her legs to tell something and I believe her. Compare to her arms, her legs can move a lot better. Maybe Botox relaxed her muscles and encourage her movement. 


This is a video I took a long time ago. In the video you can see Mujhee kicking the ball.

I believe that Mujhee has some functions to her legs and it is possible, with His permission, that one day she can do more with them. She'll probably do switching as a way of communication or perhaps she can kick them as a way to call me or even better, walk towards me to give me a hug. I see potential there. 

I believe that Allah knows all things and with Him everything is easy. Allah says in the Quran, surah al Hajj ayah 70:He knows all things even before they happen, and He has written that in His Book, Al-Lawh Al-Mahfuz,  Verily, it is (all) in the Book. Verily, that is easy for Allah, 

It was also reported in Sahih Muslim from `Abdullah bin `Amr, who said, "The Messenger of Allah said Allah issued His decrees concerning the measurement and due proportion of the creatures fifty thousand years before He created the heavens and the earth, and His Throne was over the water. 

In the Sunan, it was reported from a group of the Companions that the Messenger of Allah said: The first thing that Allah created was the Pen. He said to it, "Write!'' It said, "What should I write'' He said, "Write what will happen,'' so the Pen wrote everything that will happen until the Day of Resurrection. 

I am not in any dissatisfaction with what Allah has decreed concerning Mujhee because i understand it was written 50 000 years before  He created the heavens and the earth. I am hoping to hear Mujhee call my name and to see her run to me with a big hug, with His permission. 

May Allah make easy our affair and may my believe become reality, ameen.

Thursday, 26 January 2012

Conductive Education Summer Programme 2012

I'm going to post about the Conductive Education summer programme that I attended during the summer holiday with Mujhee. The program lasted a week at Carson Street School. CE is a system of learning. So in this program a conductor helps us guide the kids on how to do simple things that we take for granted like laying down, sitting, standing, walking, holding, and so on.

There were about 7 kids in the program, depending on the day. In this program parents are allowed to come so they can learn with their child.

Mujhee learnt how to sit on a stool while holding on the grasp bar and looking in the mirror. Masha Allah Mujhee sits very well. From sitting she is lead to practice her standing while holding herself at the edge of the plinth. I have to hold her knees to keep her standing. Masha Allah she tries so hard to stand.

From standing she does laying on the plinth series. This practice should help Mujhee go in and out off bed. The laying series including laying on her tummy. Mujhee is uncomfortable with laying on her tummy although this series help her stretch her back and legs. Most of the kids cry during this series, but the conductor keeps going on with the rhyming instructions, some how it gets me hypnotised. While laying on her tummy, she holds her head up and bends her arms under her shoulder. Masha Allah, she holds her head up beautifully while looking at the mirror.

After that she is rolled onto her back by streching her arms up and to the side. When laying on her back she learn to hold a rattle with one hand while streching her arms up, down and to the side.  Then both hands are holding onto a bar doing the same stretches up, middle and down. Here she learns how to let go of what she's holding.

While still laying on her back, her legs are stretched by bending her knee and feet flat, one leg at a time. Then her legs are stretched in and out. After that both her legs are pushed together and her bottom is raised up like an arch.

When the legs are done she goes back to laying on her tummy by stretching one arm up and pushing the other arm to make her roll. This is the time when the kids start crying again. Mujhee's knee gets caught on the plinth. From that I help Mujhee push herself down onto the plinth. Before standing I put on Mujhee socks and shoes again.

Mujhee got to practice her walking as well. She needs her arm wraps so she can keep a hold on the ladder. Two people are needed to do the walking task. One needs to sit infront of her and hold her arm, while the other person works from her back to do the wakling series that includes bending her knees, helping her take a step, stretching her leg and push forward on the ladder. Masha Allah, Mujhee does an amazing job with walking. There were few steps that she can initiate herself. She then walks to the plinth for morning tea.

For morning tea, I feed Mujhee some pure fruit. Alhamdulillh she enjoy the mango puree rather than banana or avocado.

The program finished with craft, an opportunity to practice using hands.

Alhamdulillah, I really enjoy spending my time with Mujhee, which I should do more often. I can sense Mujhee is happier when I am with her and what important is I feel delight to be with her.

You can read our previous summer programme here. Enjoy reading!

Sunday, 8 January 2012

I am taking Mujhee to Chiro now.

Six months ago Mujhee's hips and spine x-rays showed dislocation on her hips by 36% and her spine by 15% curved. With the result I was worried if Mujhee would need another surgery in the near future. So I decided to take her to chiropractor for treatment.

At that time I had the worse back pain like my dear friend. I just took some homeopathic remedy, arnica and rubbed my back with the massage oil I made using essential oils of black pepper, ginger, rosemary and marjoram. Alhamdulillah it got better, but didn't cure it. My friend told me that she was seeing a chiropractor and she recommend him to me for Mujhee.

The first time is always hard. It took me two months to get Mujhee an appointment for her first chiropractic treatment after the last x-ray results showed some concern. She might need another surgery if the hips got worst. The initial appointment was longer than the actual treatment, as the chiropractor asked a lot about Mujhee's medical history. 

Since then we visit him twice a week, eventhough we were asked to come three times a week. After that it was reduced to once a week and now we come fortnightly.

The spine should be well aligned so the nerves can work properly. The nerves job is to carry message to tell each of your body parts what to do. If the spine is misaligned, the nerves might not work properly. This can affect your sight, hearing, heart, brain funtion, muscle funtions, hormones and so on. For someone with special needs like Mujhee, her spine becomes easily misaligned from poor posture. 

For the treatment, the chiropractor hold Mujhee on his lap while running through her spine with his fingers. Then he put Mujhee on the treatment table before manipulate her spine using his hands. Usually Mujhee is laid on her side, left and right to adjust her lower and middle spine. Then he lays her on her back to do her upper spine and head. 

After 2 months of treatment, the chiropractor said that Mujhee conditions was 60% better than the first time he saw her. I agree too, because her muscles are more relaxed most of the time. At some stage even her sleeping got better, but now it is still a huge issue for me to find the solution.

Insha Allah I will write more about Mujhee. There are so much to write about, I just hope I have the time to do it.