In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Monday, 21 October 2013

Topamax: The new anti-convulsive medicine for Mujhee.

This is going to be a review of Mujhee seizures. This is a post about her previous review, More seizures: New medication new hope.

Last week Mujhee's seizures got worse because she needs twice the Midazolam in a day to control her prolonged seizure. In the afternoon before Eid day, she has her seizures. Her father gave her Midazolam. Early in the morrning, when I got her ready for Eid prayer, she had more seizures. So I gave her another dose of Midalzolam. Alhamdulillah, she was alright with no prolonged seizures on Eid day but was sleeping all day. That night she could not sleep and her seizures came again. She was laughing continuously until tears came out of her eyes. That night I didn't give her Midazolam, tbecause her seizures were short and not more than 5 minutes although it kept coming. She didn't sleep that night. She fell asleep in the morning. In the afternoon she had another prolonged seizures activity so I gave her Midazolam. At night she had it again. The next day she sleep most of the day and awake at night. She missed school a lot because of this.

I noticed that her seizures got worse every second day now. The day that she was seizure free is the day when she sleeps all day and awake at night. Than early in morning her seizures will come again with another activitiy at night. These are the prolonged seizures that need midalzolam to stop. She could get more that 10 short seizures in a day that last for few seconds.

Basically this year Mujhee has developed more seizures and we have been increasing some dosages of her anti-convulsives medication and trying some new ones. Masha Allah, these medications can't control her seizures. On Friday she had her fifth medications review for this year and scheduled for another one before the end of this year. In this review, her neorologist introduces a new medication called Topamax. I already don't like the sound of Topamax's side effects.

She is on two tablet twice a day of Topamax. She is still with the same dosage of Frisium, one tablet twice a day. The Keppra is increased into 4 mls, twice a day. The Trileptal will be discontinued this Friday.

Insha Allah we're going to try Ketogenic Diet as a treatment for epilepsy.

Studies show that approx 1/3 of children treated with the ketogenic diet have greater than 90% seizure control with half of these becoming seizure free. An additional 1/3 gain a 50% reduction in seizures. The remaining 1/3 discontinue the diet due to its ineffectiveness or its difficulty. Epilepsy Queensland Inc.

When I writing this, there is a bit improvement as her seizures don't last longer. Alhamdulillah for the change and I hope her condition will only gets better.

Thursday, 17 October 2013

Eid al Adha: What are you willing to give up for Allah?

Last Tuesday, the 10th day of Zulhijjah, the last month of Islamic calender, Muslims celebrated Eid al Adha or Festival of Sacrifice, by slaughtering a sheep or other livestock and distributing the meat to the people in need. Traditionally the slaughter is done soon after the Eid prayer and at the masjid. Here in Australia it is done at the licensed slaughter house. Alhamdulillah, religious ritual slaughter is legal here.
Insha Allah, there are many ways you could make the sacrifice especially through the charity organizations like Islamic Relief AustraliaMuslim Aid Australia and Human Appeal Australia.

Muslims celebrate Eid al Adha to commemorate the faith of Prophet Ibrahim alaihi salam willingness to follow Allah's command to sacrifice his dearest possession, his own son Ismail alaihi salam and Ismail alaihi salam readily agreed to his father need to obey the command of Allah. In the end Allah provided him a sheep for sacrifice or qurban instead, as both of them submitted to the Will of Allah. You could read the story of Ibrahim's sacrifice here and watch it below.

Can you imagine yourself in the position of Prophet Ibrahim, sacrificing someone or something that you love dearly for the higher purpose? Who is your Ismail? What are you willing to give up for Allah?

There are many thing that I would do for the sake of Allah and for me parenting is full of necessary scarifies. I sacrifice my myself to be a staying at home mother to fulfill the amanah or trust from Allah to me. Instead of working and earning money there is no mistake when I choose to take the responsibility of fulfilling the trust by staying at home with my children 21 years ago.  because I want to raise righteous children. In sha Allah with the help of Allah, I would nurture, educate, manage and protect the growth of my children, as they are my first priority over anyone else.

I also scarify my hard work that was needed to raise a daughter with special needs. Alhamdulillah, being a mother prepared me for this challenge. I could not do it except Allah gave me the help, strength, patience and unconditional love.

I scarify my time with parental duties to fulfil my responsibility. I'm not saying I hate spending time with my children but as a mother I hardly get to spend quality time just for myself anymore, In sha Allah, if it's not in here there will be a time for it later, in the hereafter when we will gather together again.

Alhamdulillah, I wouldn't trade parenting for anything. It's all worth it because it will be a day when my Creator will ask me to account my responsibility as a mother and I hope that day I could tell Him that I raised my children with ihsan to the best of my ability to obey Him and to follow His messenger way. In sha Allah I'll have an easy account because I fulfill it.

Eid Mubarak to you and your family. I hope you have a wonderful and blessed Eid al Adha! May Allah accept it from us and you.

Allahu Akbar!