In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Miraculous Mujaheeda

Alhamdulillah, I have a daughter who is 7 9 thirteen years old and her name is Mujaheeda but people called her Mujhee or Muji, Muj and Muja. She was diagnosed with Cerebral Palsy a month after she was born. Remarkably, she had a severe brain injury during birth caused by placenta abruption meaning the placenta separate from the wall of uterus before she was born.

My gorgeous girl, Mujhee, has spastic CP, which makes all her muscles stiff and tight. She cannot walk because she can’t control her muscles voluntarily. Any movement is difficult for her. Both her arms and legs are affected as well as her trunk, face and mouth. 
Insha Allah, it is possible that she can walk and talk one day as we don't know what will happen in the future and she is practicing walking everyday at her Carson Street School through a program called Conductive Education. Awesome program she is attending so far. She is currently in Year 8 high school and goes to Castlereagh School. She is happy moving around in her Zippie wheelchair Guppy by Motum wheelchair and uses Leckey FreeStander frame for standing. 

My joyful girl has eating and drinking difficulties because her muscles that open and close her mouth, lips and tongue are affected. She also has trouble chewing and swallowing, so she is being fed through a tube that goes through to her stomach from her abnominal wall call PEG or Percutaneous Endoscopic Gastrostomy. Even though she cannot say any words verbally because her mouth muscles are affected, she uses a unique language and PODD (Pragmatic Organisation Dynamic Display) book for her complex communication needs. She shakes her head to the side to say no and sometime looks at you or moving her lips but rarely nodding her head when she say yes. Subhana Allah when she was around 2 years old she gave her first delightful smile. Allahu Akbar! It brings me hope.

My survivor, Mujhee, also has sensory processing challenge. She has cortical hearing impairment caused by damage of the primary audiotory cortex. Although she is using hearing aids, it is hard for her to respond because of her physical difficulties. She has cortical blindness because the visual cortex of the brain is not functional due to the brain damage. She is stunning and charming but has learning difficulties because of her physical difficulties. Although she appears like she is in her own world, genuinely, she can learn and she understands more than what we would think. She brings so much wonder and joy to my family and me.

Alhamdulilllah she has mild epilepsy only without violent uncontrollable contractions of muscles. When she has it she appears to be daydreaming, her eyes are blinking rhythmically and her muscles are twitching. She also has unusual, repetitive, uncontrolled movements, such as chewing movements of the lips and turning of the head. Usually it bleeds her tongue and mouth because she bites them.

My precious girl, Mujhee, has been attending a Conductive Education Program at Carson Street School since she was 4. She eagerly enjoys attending the program because it gives her the opportunity to learn how to learn and to be herself. The staff at her school are fantastic. Sometimes she comments that the program was a bit hard for her but she loves it.

Alhamdulillah, I treasure the opportunity to care for my amazing girl, Mujhee, and she purely, taught me unconditional love.
The day I met her was filled with a mercy of Allah because that day I saw a miracle. It was the day when my life is transforming into a world filled with wonder and surprise. She is a real blessing for my family and me and brings so much truthful happiness.

For more about miraculous Mujhee in Malay read Warkah untuk anak Cerebral Palsy and my personal experience dealing with grief read How a Muslim mother of a child with disabilities struggles through grief,

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Mujhee's mum/ Lightnur.